The Thing About Charley

At our 20 week sonogram, my wife and I were informed that our child had a severe birth defect known as Congenital Diaphragmatic Hernia. Our daughter’s diaphragm had not formed properly and her stomach, bowel, spleen were sitting up in her chest, impeding lung and heart development. The doctors were optimistic she would make it to birth but she would need major surgery a few days out to try and get everything back to a place where she’d be able to live a normal-ish life. We moved to Philadelphia on January 1st to give birth at CHOP and then immediately enter the NICU, two floors below the Special Delivery Unit. This is my indelible life.